Associate Director Advocacy

We are seeking a highly motivated and patient-centric Associate Director of Patient Advocacy to support and execute Vor’s patient engagement strategy. This individual will serve as a key liaison between the company and patient advocacy organizations, ensuring patient insights are meaningfully integrated into internal initiatives and decision-making.

This is a field-based role requiring significant travel to engage directly with patient communities, advocacy organizations, and key stakeholders. The ideal candidate is energized by being in the field, building relationships, and representing the patient voice both externally and internally.

This position reports to Senior Director Patient Advocacy and works cross-functionally across Corporate Affairs, Clinical Operations, Medical Affairs, and Commercial teams.

Key Responsibilities

Patient Advocacy Engagement & Execution

- Execute components of the patient advocacy strategy aligned with Vor’s mission and business priorities

- Serve as a primary field-based contact for patient advocacy organizations, building strong and trusted relationships

- Conduct regular in-person engagement with patient groups, attending conferences, meetings, and community events

- Gather and translate patient insights into actionable feedback for internal stakeholders

- Support the development and execution of patient-focused initiatives, including advisory boards, listening sessions, and educational programs

- Maintain a deep understanding of the advocacy landscape and identify opportunities for meaningful engagement

Field-Based Relationship Management

- Represent Vor within the patient advocacy community with credibility, empathy, and professionalism

- Build and maintain long-term relationships with regional and national advocacy organizations

- Identify emerging advocacy groups and community leaders relevant to Vor’s therapeutic areas

- Serve as a visible and accessible presence in the field, strengthening Vor’s reputation within the patient community

Cross-Functional Collaboration

- Partner with internal teams to ensure patient insights are incorporated into clinical, medical, and commercial strategies

- Collaborate with corporate affairs and communications teams to align messaging and engagement activities

- Provide tactical input and real-world insights from the field to inform internal decision-making

- Support internal education efforts to enhance organizational understanding of patient needs

Compliance & Operational Excellence

- Ensure all activities are conducted in compliance with company policies, legal requirements, and industry standards

- Manage multiple priorities effectively in a dynamic and evolving environment

- Maintain accurate documentation of engagements and insights

Education & Experience Requirements

- 6–10 years of experience in patient advocacy, community engagement, public affairs, or related roles within biotech, pharma, or healthcare

- Demonstrated experience building relationships with patient advocacy organizations; rare disease and/or autoimmune experience preferred

- Strong interpersonal and communication skills with the ability to engage diverse stakeholders

- Experience working cross-functionally in a matrixed environment

- Ability to translate patient insights into meaningful and actionable recommendations

- Self-starter with strong organizational and project management skills

- Bachelor’s degree required; advanced degree preferred

Travel & Work Environment

- This is a field-based role with extensive travel requirements (approximately 50–70%)

- Frequent travel is required, including evenings and weekends, to attend patient events, conferences, and community engagements

- Candidates must be comfortable spending significant time in the field and working a flexible schedule aligned to patient community needs

The salary range for the Associate Director, Patient Advocacy is expected to be between $200,000 and $220,000 per year. Individual pay may vary based on multiple factors including but not limited to relevant job-related skills, experience, education or training, market factors, and work location.