Associate Director, Patient Advocacy, Skeletal Dysplasia

Job description

**Mavericks Wanted** When was the last time you achieved the impossible? If that thought feels overwhelming, you might want to pause here, but if it sparks excitement...read on   In 2015, we pioneered a “moneyball for biotech” approach, pooling projects and promising early-stage research from academia together under one financial umbrella to reduce risk and unleash innovation. This model allows science and small teams of experts to lead the way. We build bridges to groundbreaking advancements in rare disease, and develop life-changing medicines for patients with unmet needs as fast as humanly possible.    Together we define white space, push boundaries, and empower people to solve problems. If you're someone who defies convention, join us and work alongside some of the most respected minds in the industry. Together, we'll ask "why not?" and help reengineer the future of biopharma. At BridgeBio, we value curiosity and experimentation—including the ethical & thoughtful use of AI to improve clarity, speed, and quality of work. ### **What You’ll Do** The Associate Director, Patient Advocacy,Skeletal Dysplasia will develop and execute patient advocacy activities that support BridgeBio’s work in skeletal dysplasia, primarily focusing on Europe, Latin America and other international markets as needed, and requires fluency in both Portuguese and Spanish. The role has responsibility for the development and execution of the skeletal dysplasia patient advocacy activities in support of clinical development and commercialisation, while safeguarding long-term patient trust and community relationships in support to the Global and International Patient Advocacy strategy Reporting to the Executive Director of International Patient Advocacy, this role drives engagement across the skeletal dysplasia community in Latin America, Europe and supports other relevant international and local markets as needed, ensuring community insights inform company strategy and decision-making. The Associate Director supports the development of external international partnerships and advocacy and educational initiatives, strengthening meaningful outreach across the region. ### **Key Responsibilities** - Serve as the primary liaison to patient advocacy organizations in Latin America, Europe and other international markets as needed, establishing and strengthening compliant, long-term relationships built on trust, transparency, and alignment - Support the development of the patient advocacy strategy and implement an international patient advocacy plan for skeletal dysplasia, aligned with the international plan and local priorities - Represent BridgeBio at patient advocacy and community meetings across Europe, Latin America and other international markets as needed, building and strengthening relationships with patient organizations and local communities - Bring patient and caregiver perspectives into clinical development, medical affairs, regulatory, market access, and commercial planning, as appropriate to the stage of each program - Plan and deliver appropriate engagement activities, such as advisory boards, patient organization meetings, educational initiatives, community surveys, patient videos and opportunities to provide input on patient-facing materials - Adapt engagement and communications for Spanish- and Portuguese-speaking and other international communities, ensuring materials and interactions are culturally relevant and accessible - Support the Executive Director of International Patient Advocacy in strategic planning and oversight of advocacy-related budgets, including grants, sponsorships, advisory engagements, and educational initiatives - Work with local and international teams to understand differences in care pathways, access barriers, community priorities, and advocacy environments across international markets - Coordinate international grants, sponsorships, advisory engagements, and program budgets in line with applicable policies and local requirements - Share clear, actionable community insights with internal partners while protecting individual privacy, preserving patient trust, and maintaining appropriate boundaries - Monitor and report changes in relevant policies and industry requirements for patient organization engagement and ensure external activities meet company standards and local laws - Promote a patient-first culture by communicating patient and caregiver perspectives, unmet needs, and appropriately consented stories and imagery through internal activities and company materials - Strengthen BridgeBio’s role as a trusted partner in the skeletal dysplasia advocacy community through presentations and participation in relevant external forums ### **Where You Will Work** - This role is based in Europe - Frequent travel across Europe, Latin America and other relevant geographies is required; travel will vary with community and business needs ### **Who You Are** - Bachelor’s degree required, preferably in a scientific field; advanced degree preferred. - 5+ years of patient advocacy or community engagement experience, including 3+ years within biotech/pharma. - Experience working with rare disease communities; experience with skeletal dysplasia or other genetic rare conditions is preferred. - Fluency in both Spanish and Portuguese is required to engage effectively with patient communities and partners in both languages. Strong professional English is also essential for international collaboration. Knowledge of German and French is an advantage. - Demonstrated ability to build trusted partnerships with patient organizations across countries and cultures, ideally including Latin America. - Understanding of patient engagement requirements, healthcare systems, and access considerations across international markets; familiarity with Europe and Latin American markets is preferred. - Strong cross-functional collaboration, clear communication, and the ability to manage multiple priorities independently in a matrixed organization. - Willingness and ability to travel frequently across Europe, Latin America and other relevant geographies. **Rewarding Those Who Make the Mission Possible** We have high expectations for our team members. We make sure those working hard for patients are rewarded and cared for in return. - Market-leading compensation. - Remote/Hybrid work model - we value your flexibility in how you work but encourage time in the office to strengthen our culture, collaboration, and sense of community. - We provide career development through regular feedback, continuous education and professional development programs. - We celebrate strong performance with financial rewards, peer-to-peer recognition, and growth opportunities. **As a global company, our comprehensive benefits may vary based on location. We have high expectations for our team members. We make sure those working hard for patients are rewarded and cared for in return.** **For BridgeBio Full-Time U.S Based Roles:** **Financial & Rewards** - **Market-leading compensation** - **401(k) with employer match** - **Employee Stock Purchase Program (ESPP)** - **Pre-tax commuter benefits** (transit and parking) - **Referral bonus** for hired candidates - **Subsidized lunch and parking** on in-office days **Health & Well-Being** - **100% employer-paid medical, dental, and vision premiums** for you **and** your dependents - **Health Savings Account (HSA)** with annual employer contributions, plus **Flexible Spending Accounts (FSA)** - **Fertility & family-forming benefits** - **Expanded mental health support** (therapy and coaching resources) - **Hybrid work model** with flexibility - **Flexible, “take-what-you-need” paid time off** and company-paid holidays - **Comprehensive paid medical and parental leave** to care for yourself and your family **Skill Development & Career Paths:** - People are part of our growth and success story - from discovery to active drug trials and FDA pipelines, there are endless opportunities for skill development and internal mobility - We provide career pathing through regular feedback, continuous education and professional development programs via LinkedIn Learning, LifeLabs, & BetterUp Coaching - We celebrate strong performance with financial rewards, peer-to-peer recognition, and growth opportunities By applying, you acknowledge that BridgeBio will process your personal information as described in our [Global Candidate Privacy Notice](https://bridgebio.com/bridgebio-global-candidate-privacy-notice).