Senior Director Patient Advocacy

Job Summary: We are seeking an experienced and mission-driven Senior Director of Patient Advocacy & Policy to lead our engagement with the patient community and shape and excute Vor’s engagement with the patient community. This individual will serve as a key interface between the company leadership and patient advocacy organizations, ensuring the patient voice is embedded across our business and reflected in decision-making, strategy, and communication.

The ideal candidate is comfortable operating in a hands-on “player coach” environment, brings deep experience developing and executing patient advocacy engagement strategies in a biotech environment, excels in collaborative, matrixed organizations, and is eager to grow alongside a rapidly evolving company. Experience and relationships in the rare and autoimmune disease. This position reports to the Chief Medical Affairs Officer and works cross-functionally across Corporate Affairs, R&D, Clinical Operations, Commercial and Medical Affairs. Job Responsibilities: Patient Advocacy Leadership

· Develop and execute a comprehensive patient advocacy strategy aligned with Vor’s mission, pipeline, and business objectives

· Leads others and serves as a primary point of contact for all patient advocacy groups, building strong, trusted, and enduring relationships

· Translate the needs and perspectives of patient communities into meaningful insights for internal teams

· Ensure the patient voice is consistently integrated into clinical development, regulatory affairs policy, communications, and programs

· Lead patient-centric initiatives and engagements, including patient councils, listening sessions, and educational programs

· Continuously assess and refresh the advocacy landscape, maintaining regular engagement to align on short- and long-term priorities and initiatives

· Translate patient and community insights into actionable recommendations that inform internal strategy and decision-making

Cross-Functional Collaboration

· Operate effectively within a matrixed environment, collaborating across multiple teams to embed patient insights into decision-making

· Provide strategic counsel to internal partners to ensure alignment between corporate priorities and patient community needs

· Partner with corporate affairs, communications, and policy teams to ensure consistency in messaging, outreach, and advocacy engagements

· Foster collaboration and open dialogue across teams to proactively identify solutions and enhance organizational effectiveness

Organizational Impact

· Champion a culture of patient-centricity, building organizational understanding of patient experiences and needs

· Partner with internal leaders to inform strategy, shape narratives, and ensure transparency and alignment with the patient community

· Manage multiple initiatives and priorities with clarity, thoughtfulness, and strong project management skills

· Demonstrate a solutions-oriented mindset in a dynamic environment, supporting teams through change

· Ensure all activities are conducted in full compliance with company policies, industry standards, and applicable laws

Education & Experience Requirements:

· 10-15 years of experience in patient advocacy, public policy, or related roles within small to mid-size biotech organizations

· Demonstrated success building and maintaining relationships with patient advocacy groups; existing relationships in the rare disease and/or cardiovascular community are a plus

· Experience connecting patient advocacy efforts with policy-shaping initiatives; understanding of the U.S. health policy environment preferred

· Strong cross-functional leadership skills with experience operating in highly matrixed teams

· Exceptional interpersonal, communication, and executive presence skills; able to represent Vor with credibility and empathy

· Proven ability to manage multiple priorities and drive initiatives in a fast-paced, evolving environment

· A collaborative, low-ego team player who is eager to grow with a mission-driven company

· Bachelor’s degree required; advanced degree in public health, public policy, communications, or related field a plus

· Attend meetings as needed; travel approximately 30-40% of the time

The salary range for the Senior Director, Patient Advocacy is expected to be between $275,000 and $295,000 per year. Individual pay may vary based on multiple factors including but not limited to relevant job-related skills, experience, education or training, market factors, and work location.